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The different faces of autism

16 Feb, 2012 10:38 AM
Kids like Dante and Lauren are different, yet life’s tougher for them and their parents than it should be because they have a disability that’s not visible. Goya Dmytryshchak looks at the battle autistic kids face just because they live in the west.

WHAT day was my birthday, May 21? Without blinking, Dante replies: ‘‘Saturday.’’

What day was November 28, I ask, picking a date at random.

‘‘Monday! That’s the day I went to Woodsy. I always get upset. I wanted to go to Werribee Primary. It’s too busy!’’

Dante was diagnosed with autism in kinder. Last year, he revealed a savant’s ability of knowing which day every date falls on.

Also last year, he was forced to leave school aged just eight.

Starting out at Western Autistic School’s now defunct Deer Park campus, Dante later transferred to the Laverton campus.

But with the school only catering for children up to year 3, Dante is moving from Western Autistic to Woodsy — Woodville Primary School.

Mum and dad, Angela Hickey-Sorbello and Danny Sorbello, started a lobby group from their Werribee home, pushing for a prep to year 12 autism school for Melbourne’s west.

Late last year, the state government acquiesced, announcing such a school would be built at Laverton.

For Dante, the announcement comes too late, particularly when its construction is still subject to budget deliberations.

Hickey-Sorbello says Woodville Primary is ‘‘autism-friendly’’ but a senior specialist school in the west would be insurance in case things go belly up.

‘‘I think every parent would like their child to be mainstreamed like our son,’’ she says.

‘‘If that doesn’t work out you’ve got back up. We’ve got something there for security for Dante.

‘‘I think my biggest fear is secondary school.

‘‘He’s literal, so there’s the bullying factor. I think every parent has that, but with them it’s like, if you say, ‘Jump off the roof,’ they may go jump off the roof because they’re so literal.’’

Despite heading a lobby group for specialist education, Hickey-Sorbello says an autism-specific school is more suited to children with ‘‘classic autism,’’ not a child like Dante.

‘‘They really do need something for high-functioning, where it’s in the middle,’’ she says.

Danny Sorbello says Dante’s future in the mainstream system will be ‘‘a real lottery’’.

‘‘In an ideal world, you hope that he transitions well,’’ he says.

‘‘But the thing is, if he doesn’t transition well, I mean, what happens then?

‘‘All the kids are different.

‘‘Maybe that’s what makes it so hard. But having said that, if you can harness these kids ...

‘‘I don’t know what Dante is gonna do, what he’s gonna be able to do later on or anything like that. But if you can harness that talent somehow, I mean, maybe, he may be a genius.

‘‘He could be anything, who knows.

‘‘It’s what the paediatrician said to us at the time: it’s about reaching their potential. You just don’t know what their potential is. They could be really special and something super-duper.

‘‘You just don’t where you’re kid’s going to go.’’

VAL GILL'S openness about not wanting a prep to year 12 autism school in the west has seen her incur the vitriol of some parents, and even political wrath.

But the principal of Western Autistic School stands by her belief that you can’t create an autism ‘‘silo’’.

Even so, she sees why mums and dads want that ‘‘insurance’’.

‘‘Look, it’s another option and I can understand parents wanting that option.

‘‘But to have them in an autistic environment from prep until the real world, somewhere in that you would have to build in the opportunity for those kids to blossom in a social world and not in a purely autistic environment.

‘‘And talking to [special education consultant] Professor Loretta Giorcelli, she’s saying that an autism silo is against all international best practice and research.

‘‘Philosophically we believe in a really intensive kickstart and then a supported transition but also ongoing support for our students that leave us via our outreach programs.’’

Gill believes high-functioning children on the autism spectrum are falling through the cracks.

‘‘My dream would be that every school in the state has an inclusion program with a teacher there and staff that are trained to understand our kids,’’ she says.

‘‘The kids that are missing out mostly at the moment are probably your Asperger group who are really struggling, who should be in mainstream.

‘‘It’s where they should be because for them their intellect is their source of self esteem.

‘‘You would never put those kids into special school ... it wouldn’t do their self esteem and their self-worth any good.

‘‘They have autism but they have normal or above average intelligence so they’re very aware of their difference.’’

The state government says Western Autistic School will continue to operate at Laverton in its own right.

So presumably, Melbourne’s west will go from having no P-12 school for children with autism, to having two specialist schools side-by-side in the same same suburb.

Gill says there is no simple answer when it comes to how to best educate children with autism.

‘‘The spectrum is so broad, from your little non-verbal kids right through to your super-great Asperger kids.

‘‘What we need to look at in education is a range of options for different needs.

‘‘There isn’t one option that is right.’’

LAUREN is as beautiful and mysterious as the Girl With a Pearl Earring.

I say hi, but she doesn’t respond. Her mother Anna Brasier explains that’s just how Lauren’s autism is expressed.

‘‘Some people can communicate quite well, others can’t,’’ Brasier says.

‘‘Simple things, like the day-to-day or knowing what to do or how to say hi to someone and looking at people — they have to learn it by rote.

‘‘She doesn’t like crowds. Sometimes she’ll cope, like when we go to Highpoint [shopping centre], she’ll cope but she’s so busy concentrating.

‘‘Even though she talks to us all the time, when we’re out in public, she won’t talk to us.

‘‘Someone once said, if you can imagine the brain like a road map or the CBD, where you’ve got the streets going this way and that way and you want to get from A to B — you know you’ve got to go whichever way you’ve got to go.

‘‘In autism, some of the streets have been rubbed out with the wiring of the brain ... you’ve got to show them the way, pretty much, how to get there.’’

Lauren, 10, spent 18 months at Western Autistic’s Niddrie campus before being ‘mainstreamed’ at Wembley Primary in her home suburb of Yarraville.

Her Naplan results are average or above average but Brasier says ‘‘it’s a struggle to get the intelligence out of her’’.

Already the mother-of-three is planning for her middle child’s transition to secondary school.

Brasier says the family will most likely move to Melbourne’s east so Lauren may attend a school that falls somewhere between specialist and mainstream.

‘‘The next hurdle for us is high school,’’ she says.

‘‘High school’s tough for anyone and there is a private high school out in the eastern suburbs, in Hawthorn.

‘‘I’m told the fees are quite exorbitant and the waiting list is, like, 10 years long, but they cater for children that are in between — [that] are higher functioning, not at the special school end; kids that would be too articulate for a special school and not intellectually disadvantaged, but kids that just couldn’t cope with their normal high school setting.

‘‘I think the people that are making the decisions, they need to understand what autism is. You can’t do a one-size-fits-all answer for it because it’s not like that.

‘‘It’s not like someone who’s, say, a paraplegic in a wheelchair: they go and build ramps and accessibility and all that.

‘‘It’s not a visible disability.’’

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Dante Sorbello plays in his cubby house. The announcement of a new P-12 autism school in Laverton has come too late for him. Picture: Michael Copp
Dante Sorbello plays in his cubby house. The announcement of a new P-12 autism school in Laverton has come too late for him. Picture: Michael Copp
Anna Brasier says her daughter Lauren’s Naplan results were above average, but 'it’s a struggle to get the intelligence out of her'. Picture: Lucy Aulich
Anna Brasier says her daughter Lauren’s Naplan results were above average, but 'it’s a struggle to get the intelligence out of her'. Picture: Lucy Aulich
Lauren Brasier. Picture: Lucy Aulich
Lauren Brasier. Picture: Lucy Aulich

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